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IDS-TILDA

The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 2, loneliness consequences supporting data, 2014

Study number (SN): 0073-02

CITATION

*Note: We hope to receive additional waves of this study in the future.

ABOUT THE STUDY

The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) is a longitudinal study researching ageing in Ireland among people with an intellectual disability aged 40 and over. This study is the first of its kind in Europe, and the only study able to directly compare the ageing of people with an intellectual disability with the general ageing population. The underpinning values of IDS-TILDA are inclusion, choice, empowerment, person centred, the promotion of people with intellectual disability, the promotion of best practice and to contribute to the lives of people with intellectual disability.

Data Creator: Prof. Mary McCarron, Principal Investigator, IDS-TILDA, Trinity Centre for Ageing and Intellectual Disability, School of Nursing and Midwifery, Trinity College Dublin.

Funding Organisation: Health Research Board
Grant number: IDS-TILDA-2015-1

The objectives of IDS-TILDA are:

• to understand the health characteristics of people ageing with an intellectual disability;
• to examine the service needs and health service utilization of people ageing with an intellectual disability;
• to identify disparities in the health status of adults with an intellectual disability as compared to The Irish Longitudinal Study on Ageing’s (TILDA) findings for the general population; and
• to support evidence-informed policies, practices and evaluation

This research looks at the consequences of loneliness in terms of physical and psychological reactions and coping mechanisms through the five pathway social-environmental model to investigate the consequences of loneliness.  The article sought to answer the questions: how do older people with an ID physically react to loneliness?; and do lonely people with an ID demonstrate the use of specific coping mechanisms?

In adherence with the principals of open science (Health Research Board 2021, Trinity College Dublin, 2020) this data has been deposited to support the submission of a paper deposited with the HRB on 16^th October 2021 titled “An exploration of the consequences of, and coping with loneliness in an ageing intellectual disability population” by Dr Andrew Wormald, Professor Mary McCarron and Professor Philip McCallion. 

This data is extracted from the second wave of the IDS-TILDA study and utilises variables from different sections of the dataset. The data has been anonymized to prevent reverse engineering of the data and the information has been combined so that in cross tabulations of the data no less than 20 participants appear in any cell.

MAIN TOPICS

• Ageing

• Intellectual disability

• Loneliness

• Health

• Mental health

• Social inclusion

COVERAGE, UNIVERSE, METHODOLOGY

Population

Individuals with Intellectual Disability aged 40 years and older in the Republic of Ireland. A nationally representative sample was taken.

Observation units

Individual

Temporal coverage

From 05/2013 to 03/2014

Time dimension

Cross-sectional one-time study

Geographical coverage

Country: Ireland

Methods of data collection

• CAPI (Computer Aided Personal Interviewing)

Sampling procedures

Based on a pre-defined sampling frame or frames from which the sample was drawn.  This would include a census where you studied everyone in the population/sampling frame.  If so please tick all of the following that apply:

Random, meaning that at some or all stages of the sampling simple random sampling (or equivalent was employed)

An original nationally representative sample of 753 adults with an intellectual disability aged 40 years and over in the Republic of Ireland was randomly drawn for Wave 1 of IDS-TILDA. The National Intellectual Disability Database (NIDD) provided the sampling frame for recruitment, with support of the Health Research Board (HRB).

Wave 2 recruited 708 participants from the original study and remained largely representative of the NIDD; 317 of these participants completed the UCLA loneliness scale.

Response rate

Of the 753 participants who took part in wave 1 708 (94%) took part in wave 2 of these 317 responded to questions from the UCLA Loneliness scale (45%).

DATA AND DOCUMENTATION: FILES’ DESCRIPTION

Data (available through ISSDA application process)

Documentation (available for download)

LINKS

For more information about IDS TILDA and TCAID please visit:

https://idstilda.tcd.ie/

https://www.tcd.ie/tcaid/

Publications of IDS TILDA:

Wormald, A. D., McCallion, P., & McCarron, M. (2019). The antecedents of loneliness in older people with an intellectual disability. Research in developmental disabilities, 85, 116-130.

McCarron, M., McCausland, D., Allen, A., Luus, R., Sheerin, F., Burke, E., McCallion, P. (2020). The impact of COVID-19 on people ageing with an intellectual disability in Ireland. Retrieved from Dublin: https://www.tcd.ie/tcaid/assets/pdf/wave4idstildareport.pdf

McCarron, M., Haigh, M., & McCallion, P. (2017). Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland, Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA). Retrieved from Dublin: https://www.tcd.ie/tcaid/assets/pdf/wave3report.pdf

Burke, E., McCallion, P., & McCarron, M. (2014). Advancing years, different challenges: Wave 2 IDS-TILDA. Retrieved from Dublin: https://www.tcd.ie/tcaid/assets/pdf/Wave_2_Report_October_2014.pdf

McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran S. and McCallion, P. (2011) Growing Older with an Intellectual Disability in Ireland 2011: First Results from The Intellectual Disability Supplement of The Irish Longitudinal Study on Ageing. Dublin: School of Nursing & Midwifery, Trinity College Dublin. https://www.tcd.ie/tcaid/assets/pdf/idstildareport2011.pdf

ACCESS INFORMATION

Accessing the data

To access the data, please complete a ISSDA Data Request Form for Research Purposes - Pseudonymised Datasets, sign it, and send it to ISSDA by email.

Data will be disseminated on receipt of a fully completed, signed form. Incomplete or unsigned forms will be returned to the data requester for completion.

Copyright

Copyright and all other intellectual property rights relating to the data, and any documentation concerning the collection of IDS-TILDA data, are vested in The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing and Trinity College Dublin.

Acknowledgements

Any work based in whole or part on resources provided by the ISSDA, should  acknowledge: “The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA)" and also ISSDA, in the following way: “Accessed via the Irish Social Science Data Archive - www.ucd.ie/issda”.

Citation requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical citation

Notification

The user shall notify the Irish Social Science Data Archive of all publications where she or he has used the data.