Building PPI relationships

Requests to link researchers with communities are growing. How can we make PPI collaborations between academia and charities more sustainable in practice? Listen back to Building PPI relationships: Tools to help patient & community organisations address PPI capacity issues, which was held on 25th October 2023 as part of the National PPI Festival 2023.

Introduction: Prof Thilo Kroll, Site Lead PPI Ignite Network @ UCD

Overview of resources: Dr Emma Dorris, Programme Manager PPI Ignite Network @ UCD

Panel Discussion

Moderator:

• Dylan Keegan, Research Subject Advocate, UCD Clinical Research Centre

Panellists:

• Sarah Delaney, Health Research Charities Ireland
• Dympna Mulroy, Muscular Dystrophy Ireland
• Joanne Murphy, Family Carers Ireland

Find resources here

PPI and homelessness

Listen back to the seminar Involving people experiencing homelessness in research, which was held in UCD Library on 20th October 2023 as part of the National PPI Festival 2023.

Speakers:

Prof Thilo Kroll (UCD) and Sinead Casey (on behalf of Dublin Simon Community) speaking on the project (opens in a new window)Co-development of a mental health service for young people experiencing homelessness.

Daniel Hoey, Kathleena Twomey and Laurie O'Donnell (Focus Ireland) speaking about (opens in a new window)Peer research in housing and homelessness. 

With a welcome by Katherine McSharry (UCD Library) and an introduction by Dr. Emma Dorris (PPI Ignite Network @ UCD).

This seminar was the second in the series Voice & Agency 4 All aimed at understanding how we can better implement the principles of EDI in our work.

Disability, Agency, and PPI in Research

Listen to a panel discussion with Jacqui Browne, James Cawley and Stacey Grealis about Agency, Disability and PPI.

Moderated by Dr. Emma Dorris with an introduction by Prof Thilo Kroll.

PPI Ignite Network @ UCD works towards an environment underpinned by the principles Equality, Diversity and Inclusion (EDI) across all our activities. To help understand how we can implement the principles of EDI in our work, we have organised a seminar series, called Voice & Agency 4 All. This series is organised in collaboration with the (opens in a new window)national office of the PPI Ignite Network. This webinar is first in the series and focuses on disability. 

In this video you will hear from disability advocates and PPI contributors about what we mean by voice and agency, and what lessons we put into practice to improve diversity for PPI in Research.

Evaluation and evidencing impact for PPI

How do we assess, evaluate or measure the impact of PPI?

This video is a recording of a joint seminar series between the PPI Ignite Network offices at RCSI and UCD. This was part of a seminar series focusing on PPI in lab-based and preclinical research. The first presentation in this seminar is by Dr. Emmy Racine ((opens in a new window)PPI Ignite Network @ UCC) on evaluation and impact of PPI in research generally. 

The second presentation in the video is Dr Emma Dorris (UCD) and discusses the (opens in a new window)co-creation of a tool for evaluation of PPI in preclinical research. Although designed for preclinical research, this evaluation tool can be used for all PPI in research.

This is followed by reflections on the presentations by (opens in a new window)Ciarán McCarthy. The entire session is moderated by (opens in a new window)Dr Michelle Flood, site lead of PPI Ignite Network @ RCSI.

Also see our section on PPI evaluation.

Practical Guide to Public & Patient Involvement for Researchers

This video outlines some of the practical resources available to help researchers embed PPI in their research.

This includes:

• Resources available at UCD
• IPPOSI PPI Resources
• The DCU Shared Learning Group for PPI with children and young people
• Health Research Charities Ireland PPI Resources
• The University of Limerick's PPI Summer School
• EUPATI's EUPATI Patient Engagement Guidance and Training