Dorris, Emma (2024), 'Improving impact: Public involvement in glycobiology research', in Michelle Kilcoyne and Lokesh Joshi (eds.), Translational Glycobiology in Human Health and Disease (Academic Press), 399-419. (opens in a new window)https://doi.org/10.1016/B978-0-12-819655-7.00003-5
PPI Publications
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PPI Publications from UCD in 2024
Nally DM, Kearns EC, Dalli J, Moynagh N, Hanley K, Neary P, Cahill RA. Patient public perspectives on digital colorectal cancer surgery (DALLAS). Eur J Surg Oncol. 2024 Oct 20:108705. doi: 10.1016/j.ejso.2024.108705. Epub ahead of print. PMID: 39532576.
O'Brien M, Doyle S, McAuliffe FM, Leuven F, Mahmood T. Current status and future of genomics in fetal and maternal medicine: A scientific review commissioned by European Board and College of Obstetrics and Gynaecology (EBCOG). Eur J Obstet Gynecol Reprod Biol. 2024 Aug;299:336-341. doi: 10.1016/j.ejogrb.2024.05.019. Epub 2024 May 21. PMID: 38960859.
Bartels HC, Walsh D, Nieto-Calvache AJ, Lalor J, Terlezzi K, Cooney N, Palacios-Jaraquemada JM, O'Flaherty D, MacColgain S, Ffrench-O'Carroll R, Brennan DJ. Anesthesia and postpartum pain management for placenta accreta spectrum: The healthcare provider perspective. Int J Gynaecol Obstet. 2024 Mar;164(3):964-970. doi: 10.1002/ijgo.15096. Epub 2023 Sep 19. PMID: 37724823.
Walsh M, Jordan A, Schäfer L, Joha J, Heapes B, Noonan M, Gallagher W, Gallagher H, Manecksha RP, Galvin D, Nason G, Martin T, Lyons C, O'Connor R; UCD Prostate Patient Advisory Committee; Drummond FJ, Kilty C, Perry AS. IMPROVER (Involving Men with Prostate Cancer in Engaged Research): Assessing Patient Experience With Testing, Diagnosis, And Surveillance. Clin Genitourin Cancer. 2024 Jun;22(3):102063. doi: 10.1016/j.clgc.2024.102063. Epub 2024 Mar 4. PMID: 38537420.
Hammoud S, Alsabek L, Rogers L, McAuliffe E. Systematic review on the frequency and quality of reporting patient and public involvement in patient safety research. BMC Health Serv Res. 2024 Apr 26;24(1):532. doi: 10.1186/s12913-024-11021-z. PMID: 38671476; PMCID: PMC11046929.
Dorris, ER and MacLoughlin, D (2024), 'Research Ethics Committees and Public and Patient Involvement', in V. Minogue and J. Salsberg (eds.), Meaningful and Safe: The Ethics and Ethical Implications of Patient and Public Involvement in Health and Medical Research (Ethics Press). ISBN (Hardback):978-1-80441-545-0/ ISBN (eBook):978-1-80441-546-7
da Cruz Peniche P, de Morais Faria CDC, Hall P, Fingleton C, McPhillips L, Gaetz R, Roche A, McCann L, O'Beaglaoich P, Murphy D, Hickey J, Lennon O. A scoping review of patient and public involvement in empirical stroke research. Int J Stroke. 2024 Oct;19(9):962-972. doi: 10.1177/17474930241262638. Epub 2024 Jul 31. PMID: 38845171; PMCID: PMC11528947.
PPI Publications from UCD in 2023
Pierce, M., Foley, L., Kiely, B. et al. Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation. Res Involv Engagem9, 105 (2023). https://doi.org/10.1186/s40900-023-00516-4
Connor, A.E., Hughes, C., Schäfer, L. et al. Involving patients in healthcare research is well documented but can it work in lab-based research?. Res Involv Engagem9, 90 (2023). https://doi.org/10.1186/s40900-023-00500-y
Delahunt, A., Callanan, S., Killeen, S.L. et al. Including the child’s voice in research from a longitudinal birth cohort: insights from the ROLO young person’s advisory group. Res Involv Engagem9, 2 (2023). https://doi.org/10.1186/s40900-023-00411-y
Kelly BS, Kirwan A, Quinn MS, Kelly AM, Mathur P, Lawlor A, Killeen RP. The ethical matrix as a method for involving people living with disease and the wider public (PPI) in near-term artificial intelligence research. Radiography (Lond). 2023 May;29 Suppl 1:S103-S111. doi: 10.1016/j.radi.2023.03.009. Epub 2023 Apr 14. PMID: 37062673.
Symons T, Bowden J, McKenzie A, Fallon-Ferguson JM, Weekes LY, Ansell J, Murphy R, Jesudason S, Saxena M, Nichol A, Straiton N. Development of the Consumer Involvement & Engagement Toolkit: a digital resource to build capacity for undertaking patient-centred clinical trials in Australia. Public Health Res Pract. 2023 Mar 15;33(1):32122209. doi: 10.17061/phrp32122209. PMID: 35661863.
Keogh A, Mc Ardle R, Diaconu M, Ammour N, Arnera V, Balzani F, Brittain G, Buckley E, Buttery S, Cantu A, Corriol-Rohou S, Delgado-Ortiz L, Duysens J, Forman-Hardy T, Gur-Arieh T, Hamerlijnck D, Linnell J, Leocani L, McQuillan T, Neatrour I, Polhemus A, Remmele W, Saraiva I, Scott K, Sutton N, van den Brande K, Vereijken B, Wohlrab M, Rochester L, Mobilise-D consortium. Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial. J Med Internet Res 2023;25:e44206/ URL:https://www.jmir.org/2023/1/e44206 DOI: 10.2196/44206
Published in 2022
- (opens in a new window)Patient and public involvement in stroke research: a scoping review protocol. Hall et al, 2022
- (opens in a new window)Co-creating Digital Stories With UK-Based Stroke Survivors With the Aim of Synthesizing Collective Lessons From Individual Experiences of Interacting With Healthcare Professionals. Hall et al, 2022
- (opens in a new window)Priorities for rheumatic and musculoskeletal disease research in Ireland. Dorris et al, 2022
- (opens in a new window)Contested futures: The ‘humanitarian value’ of childhood in rural Sierra Leone. Bolotta et al, 2022
- (opens in a new window)Sensory Perception Quotient Reveals Visual, Scent and Touch Sensory Hypersensitivity in People With Fibromyalgia Syndrome. Dorris et al, 2022
- (opens in a new window)Research Recommendations Following the Discovery of Pain Sensitizing IgG Autoantibodies in Fibromyalgia Syndrome. Goebel et al, 2022
- (opens in a new window)What Can We Learn From a Human-Rights Based Approach to Disability for Public and Patient Involvement in Research? Browne et al, 2022
- (opens in a new window)An enhanced participant information leaflet and multimedia intervention to improve the quality of informed consent to a randomised clinical trial enrolling people living with HIV and obesity: a protocol for a Study Within A Trial (SWAT). O'Sullivan et al, 2022
- (opens in a new window)A scoping review, systematic review and meta-synthesis – performed in partnership with persons who have lived experience of cardiac arrest care. Douma et al, 2022
- (opens in a new window)Public patient involvement and engagement via ‘think-in’ for digital cancer surgery. Nally et al, 2022
- (opens in a new window)A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care . Horgan et al, 2022